Table 1 Patients demographics and clinical data according to treatment Group
From: Extra-abdominal desmoid tumor fibromatosis: a multicenter EMSOS study
| Group | I: Chemotherapy (#17) | II: Hormone therapy (#15) | III: NSAIDS (#16) | IV: Radiotherapy (#13) | V: Surgery (#257) | VI: Active surveillance (#70) | Overall (#388) |
|---|---|---|---|---|---|---|---|
| Age (years) | |||||||
| Mean | 30,8 | 39,7 | 38,1 | 45,8 | 36,6 | 40,6 | 37,5 |
| Min | 10 | 15 | 11 | 15 | 3 | 10 | 3 |
| Max | 53 | 74 | 63 | 69 | 81 | 85 | 85 |
| Gender | |||||||
| Female | 10 | 11 | 8 | 7 | 158 | 46 | 240 |
| Male | 7 | 4 | 8 | 6 | 99 | 24 | 148 |
| Presentation | |||||||
| Primary | 11 | 10 | 14 | 11 | 193 | 57 | 296 |
| Recurrent | 6 | 5 | 2 | 2 | 62 | 13 | 90 |
| Diagnosis delay | |||||||
| Mean | 20,9 | 15,8 | 15,2 | 13,5 | 13,1 | 13,5 | 13,8 |
| Min | 1 | 1 | 2 | 1 | 0 | 0 | 0 |
| Max | 72 | 72 | 53 | 60 | 120 | 120 | 120 |
| Biopsy | |||||||
| Incisional | 15 | 10 | 3 | 1 | 134 | 27 | 190 |
| Needle | 2 | 5 | 13 | 11 | 98 | 41 | 170 |
| Beta catenin | |||||||
| Not invastigated | 13 | 9 | 5 | 2 | 179 | 39 | 247 |
| Negative | 1 | 7 | 3 | 11 | |||
| Positive | 4 | 6 | 10 | 10 | 57 | 25 | 112 |
| Location | |||||||
| Arm | 2 | 1 | 25 | 9 | 37 | ||
| Foot | 1 | 8 | 2 | 11 | |||
| Forearm | 2 | 12 | 4 | 18 | |||
| Hand/wrist | 3 | 3 | |||||
| Leg | 2 | 2 | 2 | 3 | 23 | 3 | 35 |
| Pelvic girdle | 5 | 5 | 4 | 41 | 17 | 72 | |
| Shoulder girdle | 3 | 5 | 7 | 7 | 78 | 19 | 119 |
| Thigh | 4 | 1 | 3 | 53 | 12 | 73 | |
| Size | |||||||
| < 5 cm | 3 | 3 | 5 | 78 | 24 | 113 | |
| 5–10 cm | 7 | 9 | 5 | 9 | 118 | 32 | 180 |
| > 10 cm | 7 | 3 | 6 | 4 | 56 | 13 | 89 |
| Location | |||||||
| Deep | 17 | 15 | 15 | 12 | 208 | 57 | 324 |
| Extra-fascial | 1 | 1 | 38 | 11 | 51 | ||
| Nerve Involvement | |||||||
| Present | 4 | 3 | 3 | 8 | 40 | 9 | 67 |
| Neurologic symptoms | |||||||
| Present | 3 | 4 | 2 | 4 | 28 | 4 | 45 |
| Previous local events | |||||||
| Surgery | 6 | 5 | 1 | 1 | 38 | 17 | 68 |
| Trauma | 2 | 1 | 3 | 1 | 22 | 4 | 33 |
| Hormonal status (females only) | |||||||
| Menopause | 1 | 3 | 22 | 7 | 33 | ||
| Pregnancy | 1 | 2 | 1 | 4 | |||
| Recent pregnancy | 1 | 1 | 5 | 4 | 11 | ||
| Pain | |||||||
| Absent | 3 | 3 | 4 | 3 | 97 | 25 | 135 |
| Mild | 9 | 4 | 5 | 7 | 74 | 34 | 133 |
| Moderate | 4 | 7 | 6 | 45 | 9 | 71 | |
| Severe | 1 | 1 | 1 | 3 | 11 | 1 | 18 |